Mums Blog

Hello and welcome to my blog! I hope to be able to keep you up to date with various things on here – Amelie’s progress, appointments and operations etc. Thank you for checking in and keeping in touch with Amelie’s life! xx

Tuesday’s Urology Appointment

Just a very quick update on Amelie’s appointment on Tuesday – apologies for no pictures, life is very busy at the moment!! So we managed to battle through the traffic on Tuesday and met up with Amelie’s lovely consultant to chat about “where we were” after the last big operation. The answer to all that…

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Where did the summer go?!

I’m long overdue a bit of “off load” therapy on my blog here but to be perfectly honest, I just haven’t had the time to spare!! It’s been a VERY long summer for us, we didn’t manage to get away anywhere this year – apart from a trip out with our caravan just before “back…

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Amelie’s Bladder Update x

So yesterday I took Amelie back to Manchester to see the Consultants about her bladder – 3 months after having the “deflux” injections in the sphincter muscle at the bottom of her bladder. The theory behind that was to try to “bulk out” the muscle to try to make it narrower as it doesn’t work…

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Amelie’s New Bedroom!

Well it’s almost taken me as long to post this as it has to actually build and decorate Amelie’s new bedroom but here it is at last – ALL FINISHED and making life SO much easier for us!! I thought it appropriate to feature one of our many Guardian Angels who have helped us over…

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Amelie Update

I am full of mixed emotions – so much going on, good and bad, thought I would fill you in! Amelie has been home from her long stay in manchester for 6 weeks now (which has gone remarkably fast!) and has settled back into home and school life, as much as she did before. As…

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One week and counting!!

With one week to go my mind is full of so many thoughts! Primarily, Amelie’s impending life changing surgery and all that goes with it but also the amount of organisation a long stay in hospital requires!! We are not sure how long her stay will be – fingers and toes crossed we will be…

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Halloween pic
Halloween Fun!

Hi All! Hope you had a good Halloween!! Amelie managed to make it outdoors to go ‘trick or treating’ and had a lovely time, although completely wore herself out!!! Then, like a typical tube fed child, collected all her sweets together and handed them out to her sisters as she wouldn’t eat them!! I think…

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Bye Bye Summer, Hello Winter!

I can’t quite believe we are in the fifth week back to school after the summer holidays!! That went so quickly!! I’ll rewind to my last post of 5th August and try and re-live the summer again!! Most of the following week was spent ordering and collecting form chemists, health centres and receiving  from various…

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Summer 2015 Update!

Wow – I can hardly believe we are in the third week of the school holidays ALREADY!! Having Amelie at home every day certainly is a stark reminder of what a full time job she is!! She is tired today so at present, happy to lie on the sofa – so thought I’d get a…

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Happy Christmas 2014!

Just a quick note to wish you all a very Merry Christmas! I can’t believe the time has passed so quickly and there are only a few days left. My apologies to everyone who hasn’t received a card from us – I have been so busy with Amelie in and out of hospital and getting…

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