Mums Blog

Hello and welcome to my blog! I hope to be able to keep you up to date with various things on here – Amelie’s progress, appointments and operations etc. Thank you for checking in and keeping in touch with Amelie’s life! xx

Back from my break and back to the hospital visits!

Well after a major wobble about not wanting to leave my girls, I headed off to Tenerife with my lovely friend Debbie on Saturday 21st January! It was so lovely to feel the warm sun on our faces when we got there. I spoke to the girls every day and Jon did a good job…

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HIP APPOINTMENT Jan 20th 2012

Well today, as feared, brought bad news about Amelie’s hips. I took a picture of her xray as it’s easier to understand when you see them! Both sides are not in a great position, the right one being slightly worse. If we chose not to intervene, we are looking at Amelie not being able to…

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Good News At LAST!!!

Some good news at last!!! Amelie saw Mr Davey (the eye consultant) today. She saw him as she has a slight discrepancy with her sight and also there would be a concern if she has a diagnosis of Ehlers-Danlos Syndrome as the eye is made up of 80{b0ef71a87a70dede9677cd6b295595c0fd8cd55b0860dbc2cad99958ca69e49e} collagen! He will keep ‘an eye’ on…

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Spinal Appointment – Fri 6th, Manchester

Well off we went to Manchester last Thursday evening, we stayed over in the Travel Lodge next to the hospital which made life SO much easier for us.  We saw the Spinal Surgeon, who looked at Amelie’s MRI and thought he’d like her to have an xray too. So round to xray we went –…

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Appointment Updates!

Well Amelie and her sisters had a lovely Christmas, Amelie got exactly what she wanted from Santa which was a jack-in-a-box, a yo-yo and a spiderman toy!  We went to Sheffield Childrens hospital on 28th December to see the Ehlers-Danlos (EDS) Specialist, Dr Sobey. She was well informed about Amelie, which was good as we…

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CHRISTMAS WISHES!

Christmas is just around the corner and this year Amelie is starting to realise what’s happening!!! Not quite as much as Abby who is actually keeping her bedroom tidy for Santa!!! All girls are very excited, as are Jon and I – no plaster cast this year, our poor neice Sophie has it instead after…

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Another Quick Update!

It has been a bit of an emotional roller coaster the past couple of days! It’s quite hard to see your life on television! Each day you just do what needs doing and it’s only when you stop and think, or in this case, see it in front of you, that you realise just how…

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ONE MORE DAY!!!!

Well the time is almost here for you to see what we’ve been filming over the past few months! Sadly not everything is in – we did lots of filming but there’s only 46 mins (or thereabouts) after adverts – but it’s still fab! We want to raise awareness about RSS, so more diagnosis’ can…

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AMELIE IN THE MEDIA BEFORE THE DOCUMENTARY!

In the run up to the Documentary – The Real Thumbelina on Monday 12th December, ITV, 9pm Amelie has appeared in some newspapers and has had some lovely write-ups! Last thursday Amelie and Ollie (who also stars in the documentary) appeared on Calendar News where they had lots of fun in the green room together!!!…

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Amelie’s Documentary

We are VERY excited to let you know that Amelie’s documentary will be shown on Monday 12th December on ITV1 at 9pm!!! It is called ‘The Real Thumbelina’ and you can see a sneak peak at the trailer on: http://mip.itvstudios.com/programmes/documentaries/711/our-lives-the-real-thumbelina SPREAD the WORD! We want to get as much awareness out there as possible and…

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